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Walk for ALS Ethical Fundraising

Judy King was my awesome mom. She was caring, generous, funny, gracious and a very determined lady. She had ALS.

Early on in the course of her disease, she lost the ability to speak. She never liked computers, and so chose to write down all that she had to say. One day a few weeks ago, I was sitting with my son Brennan, reading through one of my mom's 'books'. I came across an entry where she talks about not wanting to use some new piece of equipment because she did not want to admit that she was getting worse. Brennan and I cried, and I said to him, "Someone has to find a cure for this disease."

The thing is, I know the cure exists. I believe there is nothing more powerful (not even ALS) than our positive thoughts. And so, I wrote this poem titled The Cornflower.

I also read Adam Cholmondeley's personal page. He is a young boy who writes about how to him, A.L.S. means Always Leaves Sadness. Several months ago, I wrote a poem about much of what A.L.S. means to me. After reading Adam's page, I felt compelled to share this too.

                          A.L.S.

Amyotrophic
Lateral
Sclerosis

                        Another
                        Lost
                        Synapse

                                                 Angry
                                                 Livid
                                                 Scream 
                         Accept
                         Let go
                         Surrender

                         Alive
                         Laughter
                         Smile

                         Amazing grace
                         Live in the moment
                         Sense of humor

                         Arrest
                         Loose
                         Silence

                         Anguish
                         Lament
                         Sorrow

                                                  Always
                                                  Loving
                                                  Soul
 Aurora                                                                                                                                                                                                                                Lightsome                                                                                                                                                                                                                      Shooting star
 

                           Ascend
                           Liberated
                           Spirit
 

The Cornflower – May 7/10

The cornflower meets the sky above
Stands tall with strength and grace
Fragile in it’s guise
Steadfast spirit may surprise
Beauty deeper than the finely petaled face

Flowers a rich bright blue
Silver leaves reflecting light
Worship the sun
With the wind they run
Emotion overwhelmed and taking flight

Drawn to the open field
The force of abiding allure
Strikingly clear
Nothing to fear
Steps drifting under their spell so pure

Beside the spot in the earth
A seed planted where you lay
Memory to safe keep
And never fall asleep
Joyful bloom and sorrow gently washed away

In this field the answer lies
Doubt fades and leaves no trace
World without disease
Carried away on tender breeze
Where the cornflower stands tall and with such grace

 

By Hayley King