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Links are valuable online resources for information about ALS and we have catalogued them by topic. For a brief description of these organizations you can access the ALS Resource Guide.

The external links on this page provide additional information that may be useful or interesting and is consistent with the intended purpose of the ALS Society of Ontario website. However, the ALS Society of Ontario cannot attest to the accuracy of information provided by these links or any other linked site. Providing links to a non-ALS Society of Ontario website does not constitute an endorsement by the ALS Society of Ontario or any of its employees of the sponsors of the site or the information or products presented on the site.


ALS RELATED ORGANIZATIONS

ALS Society of Canada
http://www.als.ca
1-800-267-4257

ALS Society of Alberta
http://www.alsab.ca/

ALS Society of British Columbia
http://www.alsbc.ca/

ALS Society of Manitoba
http://www.alsmb.ca/

The ALS Association in the United States
http://www.alsa.org/

International Alliance of ALS/MND Associations
http://alsmndalliance.org

Motor Neuron Disease Association (UK)
http://www.mndassociation.org

ALS/MND Support Groups
http://www.alsforums.com/

ALS Therapy Development Foundation - United States
http://www.als.net/research/
 
NHCC (Neurological Health Charities Canada)
http://www.mybrainmatters.ca

 

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FINANCIAL AND LEGAL SUPPORT

Canada Pension Plan (CPP) Disability Benefit
http://www.rhdcc-hrsdc.gc.ca/eng/oas-cpp/cpp_disability/index.shtml
1-800-277-9914

Ontario Disability Support Program (ODSP)
http://www.accesson.ca/mcss/english/pillars/social/odsp/  

Disability Tax Credit (DTC)
http://www.cra-arc.gc.ca/tx/ndvdls/tpcs/ncm-tx/rtrn/cmpltng/ddctns/lns300-350/316/menu-eng.html

Community Legal Clinics
http://www.legalaid.on.ca/en/contact/contact.asp?type=cl
1-800-668-8258

Ontario Drug Benefit Program
http://www.health.gov.on.ca/english/public/program/drugs/drugs_mn.html
1-866-811-9893

The Trillium Drug Program
http://www.health.gov.on.ca/english/public/pub/drugs/trillium.html


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ASSISTIVE DEVICES

The Assistive Devices Program (ADP)
http://www.health.gov.on.ca/english/public/program/adp/adp_mn.html
1-800-268-1154

Ontario March of Dimes
http://tinyurl.com/3xumsw

Tetra Society
http://www.tetrasociety.org
1-877-688-8762

Residential Rehabilitation Assistance Program (RRAP)
http://www.cmhc-schl.gc.ca/en/ab/noho/noho_011.cfm

The Ventilator Equipment Pool (VEP)
http://www.ontvep.ca
1-800-633-8977

Communication Independence for Neurologically Impaired (CINI)
http://www.cini.org/
(516) 465-1629

Disability Resources
DisabilityResources.org

World-renowned astrophysicist, Stephen Hawking, was diagnosed with ALS in 1963. He is a long-time user of augmentative communication devices. You can read about his experience with these devices at the following link.
http://www.hawking.org.uk/index.php/disability

Skeleton Key On-Screen Keyboard
http://www.myskeletonkey.com/

Gus Communications Inc.
http://www.gusinc.com/index.html


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TRANSPORTATION & TRAVEL

Wheel Trans (operated by the Toronto Transit Commission)
http://www.toronto.ca/ttc/special.htm 

Woodstock Paratransit
http://www.city.woodstock.on.ca/index.php?page_id=601 

Liberty Motor Company (vehicle modifications)
http://www.libertymotorco.com/

Shoppers HomeHealthCare - Automotive Division (vehicle modifications)
http://www.sparrowhawk.ca/

Universal Motion Inc. (vehicle modifications)
http://www.universalmotion.com/

Hope Air (free flights to medical appointments for people in rural and remote areas)

http://www.hopeair.org/pages/Request_A_Flight/RAF_Alt_requestform.html

Travelling to the Caribbean with a Disability
http://www.debbiescaribbeanresortreviews.com/distravelrev.html


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HOME CARE & COMMUNITY SUPPORT

The Disability Directorate of Ontario
http://www.gov.on.ca/citizenship/accessibility/english/directorate.htm 

The Accessibility Directory
http://www.accessibilitydirectory.ca/index.cfm
1-800-263-3463 

The Ontario Association of the CCACs
http://www.oaccac.on.ca/index.php 

Integrated Care Pathway, available at no cost from Champlain Region CCAC 
http://www.ottawahospital.on.ca/sc/rehabcentre/servicesclinics/pdf/als-icp-e.pdf

Ministry of Health and Long-Term Care Facilities
http://www.health.gov.on.ca/english/public/program/ltc/15_facilities.html
1-800-268-1154

The Direct Funding Program - Attendant Care
http://www.cilt.ca
1-800-354-9950

Victorian Order of Nurses (VON)
http://www.von.ca/


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HOME RENOVATION ASSISTANCE

Residential Rehabilitation Assistance Program for Persons with Disabilities (RRAP - Disabilities)
http://www.cmhc-schl.gc.ca/en/ab/onre/onre_011.cfm

Home Adaptations for Seniors' Independence Program (HASI)
http://www.cmhc-schl.gc.ca/en/ab/noho/noho_006.cfm
 
 

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CAREGIVER RESOURCES

Compassion Care
http://www.hrsdc.gc.ca/en/ei/types/compassionate_care.shtml

Hospice Association of Ontario
http://www.hospice.on.ca/
1-800-349-3111

Caregiver Network
http://www.caregiver.ca/

Family Caregiver Newsmagazine
http://www.thefamilycaregiver.com/publication/

Canadian Virtual Hospice
http://www.virtualhospice.ca/en_US/Main+Site+Navigation/Home.aspx


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INDIVIDUAL WEBSITES

George Goodwin's ALS Independence Website
http://www.alsindependence.com/

Dr. Glen House's Disaboom Website
http://www.disaboom.com/Health/LouGehrigsDisease/Default.aspx#


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