| Print Page |
|
A Manual for People Living with ALS
The fourth edition of the Manual for People Living with ALS is an excellent educational resource and tool. It helps readers to organize personal health information and stimulate discussion between patients, family members, and their healthcare providers about managing ALS care and coping with an often rapidly progressive neurological condition.
What is covered in the manual?
An overview of ALS, signs and symptoms, research status:
* Tips and tools for persons with ALS and family caregivers
* Where to go for help and support (local support information can be obtained from provincial ALS Societies)
* Disease management information about who makes up the ALS healthcare team, mobility and independence, swallowing and nutrition, speech and communication, breathing and lung function, oral care, end-of-life issues, and advance-care planning
* Assistive equipment and activities of daily living
* Legal and financial considerations
* Education and support resources
Functions of the online manual:
* It is completely searchable using the binoculars on the top of your screen
* Subjects listed in the table of contents are linked to their appropriate pages
* Every page has a "return to main menu" feature, which takes you back to the table of contents
* Every website is active - just click the link and you will be taken to that website.
No fee is charged for the manual when ordered by people living with ALS, their caregivers, or their healthcare providers. Libraries, schools, healthcare facilities, other organizations, and interested healthcare professionals who are not currently involved in ALS care may obtain the manual through the ALS Society of Canada for a charge of $20.00.
To download the manual in English, please click here: Manual for People Living with ALS.
To download the manual in French, please click here: Manuel pour les personnes qui vivent avec la SLA