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Please note: this policy is currently being revised by ALS Ontario
ALS Ontario recognizes your right to privacy and pledges to protect it. ALS Ontario is aware of our responsibilities under the federal Personal Information and Electronics Documents Act (PIPEDA).
Information collected
When visiting our web site, our web server automatically logs (records) domain name and standard information about the operating system and web browser you are using, as provided by your web browser. This information is used for statistical purposes to help us manage our site, but it does not identify you in any way.
We collect personal information about you only if you volunteer it in a survey and/or guest book and/or other "on site" registrations and/or make a donation. We may use this information to contact you for support purposes, communications and to answer questions you submit to the site. All information is kept confidential.
If you supply us with your mailing address online, you may receive periodic mailings from us with information about new programs and services or upcoming events.
We do not trade, sell or share mailing lists with any other organizations.
If you do not wish to receive such mailings, please let us know by calling us at the telephone numbers below or by writing to us at the address below. Please provide us with your exact name and address. We will then remove your name from our confidential list.
Donation information
The Amyotrophic Lateral Sclerosis Society uses Secure Socket Layer (SSL) encryption technology to ensure the integrity and privacy of the personal and credit card information you provide when you make an online donation or register for an event.
We maintain records of all contributions to ALS Ontario. All information is kept private and confidential, stored in a secure location and accessible only by authorized staff.
If you would like more information about ALS Ontario privacy policy, please contact us using the phone numbers or address below.
BACKGROUND
This policy is based on the guidelines outlined in the Personal Information Protection and Electronic Documents Act (PIPEDA) 2004. The Act provides requirements for the collection, use, retention, disclosure and disposal of personal information in the private sector.
The purpose of this policy is to assist staff and volunteers in complying with the Privacy Legislation.
DEFINITIONS:
Personal Information: factual or subjective information recorded or not about an identifiable individual includes:
• age, name, income, ethnic origin, social status
• opinions, evaluations, comments or disciplinary actions
• employee files, medical records
Personal information does not include name, title or business address or telephone number of an employee of an organization.
Consent: voluntary agreement with what is being done or proposed. Consent can be either expressed or implied. Expressed consent is given explicitly, orally or in writing. Implied consent arises where consent may reasonably be inferred from the action or non-action of the individual.
Disclosure: making personal information available to others outside the organization.
Use: refers to the treatment and handling of personal information within an organization.
Personal Health Information: information about an identifiable individual who is living or deceased, recorded or not, that relates to his/her physical or mental health or well-being, provision of health-care, eligibility of healthcare or registration information.
Registration Information: refers to information relating to an individual collected or created for registering the individual in connection with a custodian’s services or benefits such as name, address, telephone number, date of birth and signature. Does not include information about the individual’s health status or health care.
POLICY:
Accountability:
All staff and volunteers are responsible for maintaining and protecting personal information. ALS Ontario has designated Vice-President, Support Services as Privacy Officer. Other individuals may be delegated to be responsible for the day-to-day collection and processing of personal information.
The Privacy statement on the website contains information about ALS Ontario's policies.
Identifying purpose:
The purposes for collecting personal and health related information are identified before or at the time of collection and may be done orally or in writing. The primary purpose for collection is related to registration, provision of services and recognition of financial contributions. Those who collect information on behalf of ALS Ontario respond to questions about collection purposes in a timely manner.
Consent:
Consent, whether expressed or implied is to be knowledgeable and related to the purpose of collection. For consent to be knowledgeable, identified purpose must include the information most people would want to know. An individual’s consent should be obtained for collection and use of information. Expressed consent may be withdrawn at anytime verbally or in writing with reasonable notice. In situations where it is reasonable to believe a person’s action puts themselves or others at risk, consent may not be obtained prior to action being taken.
Limiting Collection:
The collection of personal information shall be limited to that necessary for the purposes identified by the organization for service provision and fundraising. Information will be collected by fair and lawful means.
Limiting use, disclosure and retention:
Personal information shall be used only for the purpose for which it is collected, except with the consent of the individual or as required by law. Personal information shall be retained for time periods necessary to achieve purpose and in accordance with appropriate legislation. Personal information that is no longer required to fulfill the identified purpose will be destroyed as per Record Retention Procedures.
Personal information may be disclosed as aggregate or statistical data that has been de-identified ensuring anonymity of individual. Personal information collected for fundraising activity is not sold, tracked or shared with any other organization.
Accuracy:
Personal information shall be as accurate, complete and up to date as is necessary for the purpose for which it is to be used.
Safeguards:
Personal information shall be protected by security safeguards appropriate to the sensitivity of the information.
Openness:
Information regarding the policies and procedures for management of personal information is provided to clients, family members, community and employees through open and transparent means such as website, registration forms, publications and oral communication.
Individual Access:
An individual is informed of the existence, use and disclosure of his/her personal information. Within 30 days of receipt of a written request, the individual shall be given access to that information. Individuals have the right to request correction of personal information that is demonstrated to be incomplete or inaccurate. When the request for correction is not resolved to the satisfaction of the individual, a note is documented on the file and the individual is informed of the Privacy Commissioner of Ontario and provided contact information.
Challenging Compliance/ Providing Recourse:
An individual shall be informed of the procedure regarding compliance with privacy and protection of personal information by the designated individual or individuals accountable for the organization’s compliance.
Complaints:
An individual may complain to ALS Ontario’s Privacy Officer who can be reached by email at elea...@alsont.ca or 1.866.611.8545 ext. 215, or fax: 905.248.5620. If the response is not satisfactory, an individual may complain, in writing, to: Chair of the Board of Directors of ALS Ontario, 3100 Steeles Avenue East, Suite 402, Markham, Ontario L3R 8T3. If the matter cannot be resolved, an individual may file a complaint with the Privacy Commissioner of Canada about any alleged breaches of the law.
Disclaimer
ALS Ontario is an independent, voluntary health agency and does not approve, endorse or recommend any specific product or therapy but provides information to assist individuals in making their own decisions.
Any reference to a commercial or non-commercial product, process, service or company is not an endorsement or recommendation by ALS Ontario. ALS Ontario does not endorse or recommend products, services or manufacturers. ALS Ontario assumes no liability whatsoever for the use or contents of any product or service mentioned.
ALS Ontario is not responsible for the contents of any "off site" internet information referenced by or linked to ALS Ontario's website. The inclusion of any link does not imply endorsement by ALS Ontario of the site. Use of any such linked website is at the user's own risk.
Contact Information
This is the web site of Ontario: www.alsont.ca
Our mailing address is:
ALS Ontario
402-3100 Steeles Ave E
Markham, ON L3R 8T3
Telephone: 905-248-2101
Fax: 905-248-5620
Toll Free: 1-866-611-8545
By using the website, you agree to be bound by the above, and these terms of use.
If you do not agree with any of these terms, do not use this site.