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Because ALS frequently takes its toll before being positively diagnosed, many patients are debilitated before learning they have ALS.

The disease usually does not affect the senses of taste, touch, sight, smell, and hearing.

Eye and bladder muscles, along with sexual function and drive, are typically unaffected. In some cases, people with ALS can present with personality changes known as cognitive impairments.  The exact percentage of people with ALS who experience cognitive impairment is unknown, but is estimated at 15 to 50 per cent.

ALS has a devastating effect on patients and their families. As families cope with the prospect of advancing disability and eventual death, their financial and emotional reserves are consumed. ALS is a costly disease, demanding both extensive nursing care and expensive equipment.

ALS Ontario is here to help.